How this story came to be ..
A couple years ago , before Twitter became X , someone was constantly commenting on how Caregivers should not be allowed to speak on behalf of those with Epilepsy or anything , because we ( The Caregivers) have no idea what we are talking about , our voices just didn`t matter . Like we aren't important when it comes to healthcare . Well , i had been constantly thinking about this topic , wondering how i could address it. So i decided to write about it .
My Story on " Why sharing your caregiver story is important " ⬇️
At first I was super nervous to even talk about my caregiver journey, I mean who really cares what a caregiver of someone with epilepsy or any chronic illness has to say? Most want to hear from the person dealing with the illness, not the caregiver. I thought about that for a while and I know that my daughter's seizures and her Epilepsy journey is her own, I cannot speak for her unless she gives me permission, I'd prefer she talks about her story herself .
After i wrote my story , i submitted it and the amazing folks at Social Health Network { Formerly WEGOHealth) , added it to their site .
There is a very special reason in the story , why i decided to share it and that special reason is because of a lovely comment i received from the website folks called Webnode .
* Here is the link , and you'll see why it's soooooo very VERY important to tell your caregiver stories
Thank you Social Health Network for sharing my story .
i hope you enjoy the content i provide .
Posted to my blog
Jan . 17, 2023
Lorrie / Admin